From a PALS in Connecticut
From an ALS clinician at a New York ALS clinic
Family in Connecticut
This evening as we drove home from our son’s college graduation, my husband and I agreed that without your help, there is no way we could have managed to get through the past two days. Following the emotional burden of my father’s unexpected hospitalizations and rather sudden death a week ago, and given my husband’s ALS-related needs, planning how we could attend the various events to honor and celebrate with our son was certainly more than I could accomplish.
It was important to our son that his father attend the graduation, and because of your caring and support, we were able to be present in a way that would not have been possible otherwise.
Between the hotel room you gave us that saved us from driving back and forth to Connecticut Tuesday and Wednesday and allowed me to spend time with our son while my husband rested, and the thoughtful provision of rain gear for Grad Alley; from the rides to and from Yankee Stadium both for us and for my mother, and the attentive updates on transportation from MaryAnn to keep us calm and connected; and not least of all due to the kindest possible greeting and treatment from Joe as we arrived and he settled us in at the stadium, you allowed us to enjoy our son’s graduation feeling like absolute royalty, and I was thrilled to be able to focus on his accomplishment rather than on how we would manage each next step of the way.
All of this on top of providing information, resources, and encouragement, and helping with the construction of our wheelchair ramp. If ever there was a foundation that fulfilled its mission, I’d say MAC Angels is it.
Julie providing me information about patient advocates and palliative care teams while my dad was in the hospital had nothing to do with my husband’s ALS, but everything to do with caring for our family. It was at least as important as her helping me to get my “Lots a Helping Hands” network started, for which I am also grateful.
Claire Collier must have been an amazing woman to have left behind such a wonderfully dedicated group of friends — truly angels — who pass on their love for her as compassion towards other families going through the same struggle. I hope someday to also pay forward the kindness and generosity you have shown to us in this difficult time in our lives
With much love and appreciation, Elyse B., Connecticut
Thank you for all you do. And it is a lot! With Love and Respect, Nancy M. in New York